Even with health insurance, prescription co-pays can often add up. These programs provide: Medication Financial assistance with insurance premiums and co-pays Diagnostic testing assistance You are now leaving the #RAREis Community website. Myasthenia Gravis External Assistance Programs | MGFA Program provides copay assistance for medications to individuals diagnosed with hemophilia or a rare bleeding disorder. Inclusion on this list does not reflect an endorsement by GARD or the NIH. Phone: 617-249-7300, Danbury, CT office Transportation Assistance With our network of members, advocates, and partners, we make critical connections and work to make an impact for every person with a rare disease. Diagnosis-Based Assistance Programs | NeedyMeds To learn more about the #RAREis program, download this resource. These rare disease organizations promote the needs and priorities of people living with rare diseases and their families and provide various types of support and assistance. Explore NORDs policy and advocacy updates, research and the latest trends in rare diseases. Suite 310 Orphanet is a consortium of 40 countries, within Europe and across the globe. Provides similar services as GARD only they will know more about the resources and medical specialists available in Iran. Headquarters: Provides financial assistance with ground and air travel for specialized medical evaluation, diagnosis, or treatment. Launching Registries & Natural History Studies. Our Odyssey connects young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life. Provides free domestic air travel to U.S. facilities for medical treatment, second opinions, and follow-up for patients in need. Offers nearly 70 disease-specific assistance programs that help patients pay for their out-of-pocket costs, including deductibles, co-pays and coinsurance, health insurance premiums, and transportation expenses to get to treatment. NeedyMeds Copyright 2023 NORD National Organization for Rare Disorders, Inc. All rights reserved. Plus, sign up for FundFinder to get notified when funding becomes available at PAN or other organizations. We provide resources, rare disease information, and ways to get involved. MPs seek financial help for patients with rare diseases. Help filling out Prescription Assistance Program Applications, Assistance with Medical Transportation Costs, Connect with Retreats, Camps & Recreational Programs, Patient Assistance Program Update Service (PAPUS), Diagnosis Assistance Program Update Service (DAPUS), Patient Assistance Program Administration, Chronic, Serious or Life Threatening Illnesses, Allyson Whitney Foundation - Life Interrupted Grant, Help Hope Live (Medical Fundraising Assistance), National Organization for Rare Disorders (NORD) - Rare Caregiver Respite Program, Novo Nordisk Hemophilia & Rare Bleeding (RBD) - Co-Pay Assistance Proram, Riddick's Ride Foundation's Lending Garage, Angel's Hands Foundation - Medical Assistance. Many of these diseases affect even fewer people, making it challenging to find medical professionals and support systems. With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughters needs, and I could have her provide respite whenever I needed it. About Us - The Assistance Fund Danbury, CT 06810 You may call 010-67500717 or visit their website for assistance. Insurance Premiums; Living Expenses/Household Expenses; Medical Expenses; Treatments and Procedures; Travel Expenses/Gas Cards; Wigs/Turbans/Scarves/Hats; Financial Assistance; COVID-19 Assistance.
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